Early Childhood Intervention in North Macedonia – Parents’ Perspective
DOI:
https://doi.org/10.59519/mper6203Keywords:
Early childhood intervention, developmental delay, disability, family-centered interventionAbstract
Early childhood intervention (ECI) should focus on building strong relationships with families, as this family-centered approach leads to improved developmental outcomes for children. This study examines ECI and support systems in the Republic of North Macedonia from the perspective of families of children with developmental delays or disabilities. A descriptive method was used, suitable for describing individuals, processes or situations as they unfold in nature, with no manipulation of variables. The research included a sample of 78 parents of children with developmental delays or disabilities.
The findings indicate that when at-risk factors or disabilities are identified shortly after birth, ECI tends to be quick and efficient. Most services (71.4%) are provided in ECI centers, while 28.6% of families receive services at home. Some 53.8% of families reported covering the costs of all ECI services. By the age of three, 43.7% of children had been detected, diagnosed, and received some form of stimulation services or early rehabilitation treatment. The insights gained from this study may also be applicable in other countries with similar ECI systems.
References
Bailey, D. B. (2021). Early intervention and newborn screening: Parallel roads or divergent highways? Infants and Young Children, 34(1), 3–16. https://doi.org/10.1097/IYC.0000000000000181
Bailey, D. B., Hebbeler, K., Scarborough, A., Spiker, D., & Mallik, S. (2004). First Experiences With Early Intervention: A National Perspective.
Bailey, D., B. (2001). Evaluating Parent Involvement and Family Support in Early Intervention and Preschool Programs. In Journal of Early Intervention (Vol. 24, Issue 1).
Bailey, D.B. , Aytch, L.S. , Odom, S.L. , Symons, F. , & Wolery, M. (1999). Early intervention as we know it. Mental Retardation and Developmental Disabilities Research Reviews, 5, 11-20.
Berman, S., Miller, A. C., Rosen, C., & Bicchieri, S. (2000). Assessment training and team functioning for treating children with disabilities. Archives of physical medicine and rehabilitation, 81(5), 628–633. https://doi.org/10.1016/s0003-9993(00)90047-9
Blauw-Hospers, C. H., & Hadders-Algra, M. (2005). A systematic review of the effects of early intervention on motor development. Developmental medicine and child neurology, 47(6), 421–432. https://doi.org/10.1017/s0012162205000824
Bruder, M. B. (2010). Early Childhood Intervention: A Promise to Children and Families for Their Future. Exceptional Children, 76(3), 339–355. https://doi.org/10.1177/001440291007600306
Bruder, M. B. (2001). Infants and toddlers: Outcomes and ecology. In M. J. Guralnick (Ed.), Early childhood inclusion: Focus on change (pp. 203–228). Baltimore, MD: Brookes Publishing Co.
Bruder, M. B. (2000). Family-Centered Early Intervention: Clarifying Our Values for the New Millennium. Topics in Early Childhood Special Education, 20(2), 105–115. https://doi.org/10.1177/027112140002000206
Bruder, M. B., & Staff, I. (1998). A comparison of the effects of type of classroom and service characteristics on toddlers with disabilities. Topics in Early Childhood Special Education, 18, 26-37.
Campbell, P. H., Sawyer, L. B., & Muhlenhaupt, M. (2009). The meaning of natural environments for parents and professionals. Infants and Young Children, 22(4), 264–278
Campbell, P. H., & Sawyer, L. B. (2007). Supporting Learning Opportunities in Natural Settings Through Participation-Based Services. Journal of Early Intervention, 29(4), 287–305. https://doi.org/10.1177/105381510702900402
Campbell, P. H. (2004). Participation-based services:Promoting children’s participation in natural settings.Young Exceptional Children, 8(1), 20–29.
Carta, J.; Kong, NY. Trends and issues in interventions for preschoolers. In: Odom, SL.; Horner, R.; Snell, ME.; Blacher, JB., editors. Handbook of developmental disabilities. New York: Guilford Press; 2007. p. 181-198.
Carpenter, B. (2005). Early childhood intervention: possibilities and prospects for professionals, families and children. British Journal of Special Education, 32, 176-183. https://doi.org/10.1111/j.1467-8578.2005.00394.x
Creswell, J. W., & Creswell, J. D. (2018). Research design: qualitative, quantitative, and mixed methods approaches. Fifth edition. Los Angeles, SAGE.
Creswell, J. (2015). Educational Research: Planning, Conducting, and Evaluating Quantitative and Qualitative Research. New York: Pearson.
Creswell, J. W. (2014). Research Design: Qualitative, Quantitative and Mixed Methods Approaches (4th ed.). Thousand Oaks, CA: Sage.
Dunst, C. J. (2012). Parapatric speciation in the evolution of early intervention for infants and toddlers with disabilities and their families. Topics in Early Childhood Special Education, 31(4), 208–215. https://doi.org/10.1177/0271121411426904
Dunst, C. J. (2007). Early intervention for infants and toddlers with developmental disabilities. In S. L. Odom, R. H. Horner, M. E. Snell, & J. Blacher (Eds.), Handbook of developmental disabilities (pp. 161–180).
Dunst, C.J., Hamby, D.W., & Brookfield, J. (2007). Modeling the Effects of Early Childhood Intervention Variables on Parent and Family Well-Being.
Dunst, C. J., Bruder, M. B., Trivette, C. M., Hamby, D., Raab, M., & McLean, M. (2001). Characteristics and Consequences of Everyday Natural Learning Opportunities. Topics in Early Childhood Special Education, 21(2), 68–92. https://doi.org/10.1177/027112140102100202
Dunst, C. J. (2000). Revisiting "rethinking early intervention". Topics in Early Childhood Special Education, 20(2), 95–104. https://doi.org/10.1177/027112140002000205
Dunst, C. J., Hamby, D., Trivette, C. M., Raab, M., & Bruder, M. B. (2000). Everyday Family and Community Life and Children’s Naturally Occurring Learning Opportunities. Journal of Early Intervention, 23(3), 151–164. https://doi.org/10.1177/10538151000230030501
Dunst, C. J., Brookfield, J., & Epstein, J. (1998). Family-centered early intervention and child, parent and family benefits: Final report. Orelena Hawks Puckett Institute, Asheville, NC.
Epley, P. H., Summers, J. A., & Turnbull, A. P. (2011). Family outcomes of early intervention: Families’ perceptions of need, services, and outcomes. Journal of Early Intervention, 33(3), 201-219. doi:10.1177/1053815111425929
Fowler, F.J., & Cosenza, C. (2020). Design and Evaluation of Survey Questions. SAGE Research Methods Foundations.
Friedman, M., J. Woods, and C. Salisbury. (2012.) Caregiver Coaching Strategies for EarlyIntervention Providers: Moving towards Operational Definitions. Infants & Young Children 25: 62–82. http://dx.doi.org/10.1097/IYC.0b013e31823d8f12
Fleming, J. L., Sawyer, L. B., & Campbell, P. H. (2011). Early intervention providers’ perspectives about implementing participation-based practices. Topics in Early Childhood Special Education, 30(4), 233–244. https://doi.org/10.1177/0271121410371986
Guralnick, M. J. (2019). Effective early intervention: The developmental systems approach. Baltimore, MD
Guralnick, M. J., and Bruder, M. B. (2019). Early intervention. In J. L. Matson (Ed.). Handbook of intellectual disabilities – integrating theory, research, and practice (pp. 717-742). Springer Publishing
Guralnick, M. J. (2011). Why early intervention works: A systems perspective. Infants and Young Children, 24, 6–28. https://doi.org/10.1097/IYC.0b013 e3182 002cfe
Guralnick, M. J. (2008). International perspectives on early intervention: A search for common ground. Journal of Early Intervention, 30(2), 90–101. https://doi.org/10.1177/1053815107313483
Guralnick, M.J. (2007). The System of Early Intervention for Children with Developmental Disabilities. In: Jacobson, J.W., Mulick, J.A., Rojahn, J. (eds) Handbook of Intellectual and Developmental Disabilities. Issues on Clinical Child Psychology. Springer, Boston, MA. https://doi.org/10.1007/0-387-32931-5_24
Guralnick, M. J. (2005). Early intervention for children with intellectual disabilities: Current knowledge and future prospects. Journal of Applied Research in Intellectual Disabilities, 18, 313–324. https://doi. org/10.1111/j.1468-3148.2005.00270.x
Guralnick, M. J. (2001). A developmental systems model for early intervention. In Infants and Young Children (Vol. 14, Issue 2).
Harbin, G. L., Bruder, M. B., Adams, C., Mazzarella, C., Whitbread, K., Gabbard, G., & Staff, I. (2004). Early Intervention Service Coordination Policies: National Policy Infrastructure. Topics in Early Childhood Special Education, 24(2), 89–97. https://doi.org/10.1177/02711214040240020401
Hanson, M. J., & Lynch, E. W. (2004). Understanding families: Approaches to diversity, disability, and risk. Paul H Brookes Publishing.
Hebbeler, K., Spiker, D., Bailey, D., Scarborough, A., Mallik, S., Simeonsson, R., & Nelson, L. (2007). Early intervention for infants and toddlers with disabilities and their families: Participants, services, and outcomes. Menlo Park, CA: SRI International, 116.
Karoly, L. A., Kilburn, M. R., Bigelow, J. H., Caulkins, J. P., & Cannon, J. S. (2001). Assessing costs and benefits of early childhood intervention programs: Overview and applications to the Starting Early Starting Smart program. RAND Corporation; Casey Family Programs. http://www.rand.org/publications/MR/MR1336/
Karovska Ristovska, A. (2021). Early intervention and early childhood special education: How to establish good practices? In Şehriban Koca (Ed), Research and Reviews in Educational Sciences – I. Gece Kitaplığı. ISBN: 978-625-8002-46-1
Каровска Ристовска, А. (2021). Рана интервенција и едукација на деца со оштетен слух. Скопје: Филозофски факултет. ИСБН 978-608-238-202-9
Karovska, A., Jachova, Z. (2006). Transitions of the Children with Disabilities from the Early Intervention Services in the Regular Schools. J Spec Educ Rehab 7(3-4):37-44.
Lanners, Romain & Mombaerts, Dirk. (2000). Evaluation of Parents' Satisfaction with Early Intervention Services within and among European Countries: Construction and Application of a New Parent Satisfaction Scale. Infants & Young Children. 12.
McWilliam, R. A. (1999). Controversial Practices: The Need for a Reacculturation of Early Intervention Fields. Topics in Early Childhood Special Education, 19(3), 177–188. https://doi.org/10.1177/027112149901900310
Peterson, C. A., Luze, G. J., Eshbaugh, E. M., Jeon, H.-J., & Kantz, K. R. (2007). Enhancing parent-child interactions through home visiting: Promising practice or unfulfilled promise? Journal of Early Intervention, 29(2), 119–140. https://doi.org/10.1177/105381510702900205
Sameroff, A.J., & Fiese, B.H. (2000). Models of development and developmental risk. In C.H. Zeanah, Jr. (Ed.), Handbook of infant mental health (pp. 3-19). New York: The Guilford Press.
Sapiets, S. J., Totsika, V., & Hastings, R. P. (2021). Factors influencing access to early intervention for families of children with developmental disabilities: A narrative review. In Journal of Applied Research in Intellectual Disabilities (Vol. 34, Issue 3, pp. 695–711). Blackwell Publishing Ltd. https://doi.org/10.1111/jar.12852
Salisbury, C. L., Woods, J., & Copeland, C. (2010). Provider Perspectives on Adopting and Using Collaborative Consultation in Natural Environments. Topics in Early Childhood Special Education, 30(3), 132–147. https://doi.org/10.1177/0271121409349769
Shelden, M. L. L., & Rush, D. D. (2013). The Early Intervention Teaming Handbook: The Primary Service Provider Approach. Brookes Publishing Company. PO Box 10624, Baltimore, MD 21285.
Spiker, D., Hebbeler, K., Wagner, M., Cameto, R., & McKenna, P. (2000).AFramework for Describing Variations in State Early Intervention Systems. Topics in Early Childhood Special Education, 20(4), 195–207. https://doi.org/10.1177/027112140002000401
Shonkoff, J. P., & Phillips, D. A. (Eds.). (2000). From neurons to neighborhoods: The science of early childhood development. National Academy Press.
Swanson, J., Raab, M., & Dunst, C. J. (2011). Strengthening family capacity to provide young children everyday natural learning opportunities. Journal of Early Childhood Research, 9(1), 66–80. https://doi.org/10.1177/1476718X10368588
Tomris, G., Celik, S., Diken, I. H., &Akemoǧlu, Y. (2022). Views of Parents of Children With Down Syndrome on Early Intervention Services in Turkey: Problems, Expectations, and Suggestions. Infants and Young Children, 35(2), 120–132. https://doi.org/10.1097/IYC.0000000000000212
Vargas-Barón, E., Small, J., Wertlieb, D., Hix-Small, H., Gómez Botero, R., Diehl, K., Vergara, P., and Lynch, P. (2019). Global Survey of Inclusive Early Childhood Development and Early Childhood Intervention Programs. Washington, DC: RISE Institute.
Zwaigenbaum, L., Bauman, M. L., Stone, W. L., Yirmiya, N., Estes, A., Hansen, R. L., McPartland, J. C., Natowicz, M. R., Choueiri, R., Fein, D., Kasari, C., Pierce, K., Buie, T., Carter, A., Davis, P. A., Granpeesheh, D., Mailloux, Z., Newschaffer, C., Robins, D., Roley, S. S., … Wetherby, A. (2015). Early Identification of Autism Spectrum Disorder: Recommendations for Practice and Research. Pediatrics, 136 Suppl 1, S10–S40.
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