Aging With Cerebral Palsy – Novel Major Challenge to Healthcare System and Society
DOI:
https://doi.org/10.59519/mper1008Keywords:
cerebral palsy, adult, pain, fatigueAbstract
Introduction: Cerebral palsy is a disability that affects individuals throughout their lifespan. Adults with CP are at risk for many secondary conditions such as pain and fatigue which have a significant impact on quality of life.
The aim: To allocate and analyze researches which had the assessment of secondary conditions of cerebral palsy, pain and fatigue, and their frequency in adults with cerebral palsy.
Methods: We were searching the medical literature using PubMed and keywords: cerebral palsy, older people with cerebral palsy, aging with cerebral palsy, secondary conditions.
Results: Studies of health in adults with cerebral palsy have identified pain as a significant concern. Activity and participation in adults with cerebral palsy seem to be only moderately affected by presence of pain. The majority of adults with pain had pain on a daily basis. Lower extremity and back pain were the most common pain sites. Pain and fatigue are more prevalent in females and older age groups, Adults reported many factors that exacerbate pain (eg, stress or weather) or decrease it (eg, exercise or rest. Pain is inadequately assessed and treated in this patient population.
Conclusion: The data suggest that pain and fatigue are common in adults with cerebral palsy. Potential causes of pain should be identified and addressed early to mitigate the negative impact of pain on quality of life.
References
1. Rosenbaum, P., Paneth, N,, Leviton, A. (2007). Definition and classification of cerebral palsy. Dev Med Child Neurol., 49(109), 1–44.
2. Winter, S., et al. (2002). Trends in the prevalence of cerebral palsy in a population-based study. Pediatrics, 110(6), 1220–5.
3. Bottos, M., Feliciangeli, A., Sciuto, L., Gericke, C., Vianello, A. (2001). Functional status of adults with cerebral palsy and implications for treatment of children. Dev Med Child Neurol., 43, 516–28.
4. Hutton, J., Pharoah, P.O. (2006). Life expectancy in severe cerebral palsy. Arch Dis Child., 91, 254–8.
5. Katz, R.T. (2003). Life expectancy for children with cerebral palsy and mental retardation: implications for life care planning. Neuro Rehabilitation, 18, 261–70.
6. Strauss, D., et al. (2007). Survival in cerebral palsy in the last 20 years: signs of improvement? Dev Med Child Neurol., 49(2), 86–92.
7. Turk, M., Scandale, J., Rosenbaum, P.F., Weber, R.J. (2001). The health of women with cerebral palsy, Phys Med Rehabil Clin N Am,, 12 (1), 153-68.
8. Schwartz, L, Engel, J.M., Jensen, M.P. (1999). Pain in persons with cerebral palsy, Arch Phys Med Rehabil,, 80 (10), 1243-6.
9. Van Der Slot, W.M., Nieuwenhuijsen, C., Van Den Berg-Emons, R.J., et al. (2012). Chronic pain, fatigue, and depressive symptoms in adults with spastic bilateral cerebral palsy. Dev Med Child Neurol., 54(9), 836-42.
10. Jahnsen, R., Villien, L., Aamodt, G., Stanghelle, J.K., Holm, I. (2004). Musculoskeletal pain in adults with cerebral palsy compared with the general population, J Rehabil Med,, 36 (2), 78-84.
11. Jahnsen, R., Villien, L., Egeland, T., Stanghelle, J.K., Holm, I. (2004). Locomotion skills in adults with cerebral palsy. Clin Rehabil., 18, 309–16.
12. Jahnsen, R., Villien, L., Stanghelle, J.K., Inger, H. (2003). Fatigue in adults with cerebral palsy in Norway compared with the general population. Developmental Medicine & Child Neurology, 45, 296–303.
13. Jensen, M.P., Engel, J.M., Hoffman, AJ., Schwartz, L. (2004). Natural history of chronic pain and pain treatment in adults with cerebral palsy. Am J Phys Med Rehabil., 83:439–45
14. Zaffuto-Sforza, C.D. (2005). Aging with cerebral palsy, Phys Med Rehabil Clin N Am, 16 (1), 235-49.
15. Murphy, K.P. (1999). Medical problems in adults with cerebral palsy: Case examples. Assist Technol., 11, 97–104.
16. Pueyo, R., Junqué, C., Vendrell, P., Narberhaus, A., Segarra, D. (2009). Neuropsychologic impairment in bilateral cerebral palsy. Pediatr Neurol., 40, 19–26.
17. Engel, J.M., Kartin, D., Jensen, M.P. (2002). Pain treatment and health care in persons with cerebral palsy: Frequency and helpfulness. Am J Phys Med Rehabil., 81,291–6.
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Copyright (c) 2019 Amira Kurspahić-Mujčić, Amra Mujčić (Author)
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